Step by Stones Association is a support platform for parents of children with special needs and/or rare diseases; that seeks to connect families with others who might be facing similar challenges.
We are located on 2nd floor KCB building, Garage road off Daresalam road, Industrial Area, Nairobi.
Step by Stones aims at improving the emotional and psycho-social welfare of its members at the same time equipping them with the knowledge that will help them take better care of themselves and simultaneously take care of their children.
Step by Stones is also involved in the organization of Rare Disease Day, which is an annual event held on the last day of February to raise awareness on rare diseases and the impact it has on the patients and their caregivers.
VISION AND MISSION
Vision: To be the hub of all things special needs
Mission: To help the next caregiver cope in this special needs journey
Motto: Step by step, stone after stone, together we shall overcome
STRATEGIC OBJECTIVES AND KEY ACTIVITIES
- Offer emotional support to caregivers of children with special needs
- Offer psychosocial support to caregivers through liaison with other professional bodies
- Offer training opportunities to caregivers through partnership with other professional bodies.
- Raise awareness on rare diseases and the impact it has on our society
Step by Stones was first established in Aug 2013 as a basic online support group for parents of children with special needs. This came out of a need for the founder to get a local (online) support group for the rare conditions affecting her children. All the local support groups she came across were very specific to a condition and those conditions were not related to her children.
The support group online platform (@StepStonesKE) is on Facebook, Twitter and Instagram. The Facebook group has slightly over 1000 members comprising of parents, caregivers, therapists and psychologists.
Over the years the group has grown and the needs increased to more than just a mere support group. There was also the aspect of reaching out to the low income special needs parents who could not get access to internet hence Step by Stones was officially registered in November 2016 as an association to cater for all types of disabilities. The registration formalizes the group and makes it easier for us to partner with other organizations in our bid to access more parents of children with special needs, more so those in the rural and/or low income areas
Join our Facebook online support group today .. Step by Stones Community